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What’s Happening Now

 

This year we asked our CAH community, “If you could have one wish granted, what would that wish be?”

We got lots of replies and the wishes varied greatly, but most of the wishes involved improving quality of treatment – more informed doctors, easier ways to take medication like medication pumps and auto-injectors; more awareness and education about adrenal crisis – how to prevent it and what to do if you find yourself in one of these crises; AND of course, the wish for a cure!

During this season of hope and full of wishes, we humbly ask for your financial support so the we may continue making our community’s wishes come true!

GIVE HERE

AND THANK YOU FOR YOUR GENEROUS GIFT!

RESERVE YOUR SPOT TODAY!

SHOP WITH AmazonSmile and Goodshop, and help to improve the lives of thousands of patients and families affected by CAH!

All you have to do is click on the logos below to register for each site and designate CARES Foundation as your charity of choice!

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                          Includes a link to GOODSEARCH – a browser that donates to CARES with every click!

 

 

A Phase 2, Multiple Dose Escalation Study to Evaluate the Safety and Efficacy of SPR001 in Adults
with Classic Congenital Adrenal Hyperplasia

The study is for an investigational, once-a-day pill for CAH, designed to correct hormone imbalance and potentially reduce the necessary dose of traditional steroid medications. If you are 18 years of age or older, and have been diagnosed with classic CAH, you may qualify to participate. Participants will receive study-related care and medication at no cost, and compensated for your time and travel.

If you are interested, CLICK HERE to see if you qualify.

CARES Foundation does not counsel individual patients either for or against participation in any specific research study.  Prospective volunteers should always carefully review the study’s informed consent documentation and discuss the pros and cons of their participation with trusted advisers, including their health care providers and family members.  For more information on research participation, check out https:www.hhs.gov/ohrp/education-and-outreach/about-research-participation/index.html

CLICK HERE for article from USA Today Magazine

CARES Designated Centers of Excellence

Comprehensive Care Centers for CAH offer comprehensive, expert and lifelong medical care for patients in four centers across the country. Visit our Care Centers page for more detailed information.

Fall 2016 CARES CONNECTIONS Newsletter!

Get caught up on the latest CAH reseach, education, and advocacy news. Have a glimpse at what’s happening with CAH around the world. Share in the memories of CARES events from the past year.  Be informed about CARES support, programs and upcoming events. Read our latest newsletter by clicking on the link below. Give us your feedback, and let us know if you have any comments or questions. Enjoy!

CARES CONNECTIONS FALL 2016

 
CARES has partnered with Lauren’s Hope Medical I.D. Jewelry. Click the image on the left, to order today and CARES will receive 5% of your purchase!Medical ID Bracelet

THEIR HISTORY:

In 2001, Lauren’s Hope introduced the very first interchangeable medical ID bracelet, and overnight, people who had grudgingly worn, or even refused to wear, the standard, plain metal medical ID bracelets of the past suddenly had attractive, durable, stylish options they could enjoy wearing and change to suit their mood, outfit, or activity.

Today, more than 400,000 people wear Lauren’s Hope medical IDs every day. The ever-expanding line of medical ID bracelets, necklaces, anklets, charms, bag tags, and more is always on-trend, made to the highest quality, and guaranteed to meet your needs and expectations.

Who Is Lauren?
The original interchangeable medical ID bracelet was made for Lauren, a 13 year old with diabetes who refused to wear medical ID jewelry because, as she said, ‘It’s ugly and draws attention to my illness.’ So they set out to design a medical alert bracelet that Lauren, and the millions of people like her who avoided medical IDs when they really needed them, would actually enjoy wearing.

 

Support Our Mission

Research, education and support for congenital adrenal hyperplasia

There are lots of ways to get involved. Become a member, make a donation, help organize an event, volunteer. Your generous support improves the lives of individuals and families affected by CAH.

Join Our Community          Make a Donation         CARES Foundation Video

Get Involved

 

News & Notes from the CARES Foundation

The latest from our blog

  • gala 2018 graphic whole

10th Annual Everyone CARES Gala!

This year’s special anniversary gala will be held in sunny California on May 5, 2018, at the spectacular Terranea Resort. This […]

Calendar 2017

December 14
Support Group Meeting for Parents of Newborns/Infants/Toddlers Support Group Meeting –  9:00pm (EST)

2018

February 10
A Lifetime of Health: CAH from Infancy to Adulthood – CARES Patient Education Conference – more details coming soon!

May 5
10th Annual Everyone CARES Gala – Terranea Resort, Rancho Palo Verdes, California. Check back soon for more details and a link for tickets, sponsorships and e-journal ads.

More events>>>