This conference is designed for people affected by classical and non-classical CAH and healthcare professionals interested in increasing knowledge of CAH. Participants will learn about advances in the treatment and management of the disorder.
“CAH and the First Year of Life” Speaker: Oksana Lekarev, MD, Pediatric Endocrinology
Common issues and concerns in infants affected with classical CAH. The focus will be on summarizing the management and treatment goals in this age group as well as addressing common concerns and questions families face during this important time in a child’s life.
“Surgical Aspects in CAH: New Advances” Speaker: Dix Poppas, MD, Pediatric Urology
The focus will be on the surgical options for female patients and will be helpful to parents and patients who are considering surgery. The risks, timing, complications and types of surgical procedures available to the female CAH patient will be discussed.
“Chronic Disease and Parenting” Speaker: Tara Matthews, PhD, Psychology
This session addresses parenting children with chronic health conditions. Topics include talking with children about sensitive medical topics and maximizing cooperating and coping with medical procedures.
“Genetics: Updates on Prenatal Diagnosis” Speaker: Maria New, MD, Pediatric Endocrinology
A new method for prenatal diagnosis of CAH that does not include invasive testing and unnecessary prenatal treatment is explained.
“Transitioning to Adolescent and Adult Care” Speaker: Carey Reynholds, NP, Pediatrics
The presentation will describe the transitional process between adolescent and adult care in patients affected with Congenital Adrenal Hyperplasia. It will identify strategies to overcome common barriers to transitional care.
“The Changing Needs of the Adult with CAH” Speaker: Richard Auchus, MD, PhD
CAH is traditionally considered a disease of children, but the number of adults with CAH now exceeds the number of children. The needs and concerns shift from growth and appropriate pubertal progression to long-term consequences of the disease and its treatment, tumor formation, and fertility. This talk will explore management strategies to meet these needs and new treatments under study.
“CAH and Fertility” Speaker: Isaac Kligman, MD, Reproductive Endocrinology
Infertility as a consequence of congenital adrenal hyperplasia (CAH) is due to either anatomical abnormalities or disorders of ovulation. There are many treatment options for these patients, ranging from administration of steroids to In Vitro Fertilization (IVF). We will discuss the different diagnostic and treatment modalities for couples affected with this common genetic disease.
“CAH and Dermatological Issues” Speaker: Cynthia Chen, MD, Dermatology
This presentation will discuss skin issues that affect patients with congenital adrenal hyperplasia.
Questions for the Expert panel
This is a question and answer session. Attendants will be able to ask questions of our panel of CAH experts.
Patient Tools for Living with CAH Speaker: Deborah Brown, RN
Two CARES tools for living with CAH will be discussed: Traveling with CAH and the School/Camp packet.
Injection Training Deborah Brown, RN; Carey Reynholds, NP; Alexis Feuer, MD
Participants will learn how to properly administer a Solu-Cortef® injection. Thirty minute sessions will be offered at different times during the day. Sign up for a session when you check-in at registration.
REFUND Policy: Refund requests must be submitted in writing by April 18, 2014. Please allow 3 weeks for processing.
Questions? Call CARES Foundation at 908-364-0272 (toll free- 866-227-3737) or email: email@example.com
Any communication from CARES Foundation, Inc. is intended for informational and educational purposes only and in no way should be taken to be the provision or practice of medical, nursing or professional health-care advice or services. The information should not be considered complete or exhaustive and should not be used in place of the visit, call, consultation or advice of your physician or other health-care provider. You should not use the information in this or any CARES Foundation, Inc. communication to diagnose or treat CAH or any other disorder without first consulting with your physician or healthcare provider. Any referral to physicians is provided as a courtesy only. CARES Foundation, Inc. does not specifically endorse or recommend these physicians.