Lifetime Magazine Feature on the Colello Family’s Journey with CAH
| Fall 2003 CARES Foundation, Inc. | |
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Lifetime Magazine Feature on the Colello Family’s Journey with CAH | |
| The September/October edition of Lifetime Magazine has published a sensitive, heartwarming story of one of our own—the Colello family-- and how they coped with their daughter’s diagnosis of classical, salt-wasting CAH. This is a must-read for all CAH families. It really hits home. The magazine is on the newsstands now. The magazine web site is www.lifetimemag.com.
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Growth Hormones Approved by FDA for Use in Healthy, but Short Kids |
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| Numerous CAH kids with advanced bone ages or very poor growth are treated with growth hormone to improve their height predictions. However, this use of growth hormone has been considered "off label" since these children are not growth hormone deficient. The FDA just approved the use of growth hormone in healthy, but short kids. Insurance companies have been reluctant to cover the costs of growth hormone for CAH kids, which can run from $10,000-$20,000 per year. Now that such use is no longer, "off label", we can hope that this will encourage more coverage for these costs by the insurers.
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| © 2003 CARES Foundation, Inc. All rights reserved. Republication or redistribution of CARES content, including by framing or similar means, is prohibited without the prior written consent of CARES. | |||
