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Support Groups – United States

A diagnosis of CAH can be overwhelming, frightening and confusing. That’s why patient and caregiver support is a vital function of CARES. We offer support for patients, parents and caregivers via various methods, including telephone support, face-to-face meetings and secret Facebook pages. Local and regional support group leaders are available to provide support right in your community. We also offer specialized support which caters to your individual needs.

The following specialized support groups were created to address specific questions or needs:

The Newborn Support Group meets monthly over the phone on the second Thursday night of the month at 9pm (eastern). Support group leaders who have children with CAH answer questions and offer tips on the many issues surrounding a newborn with CAH.

The Parents of Teens/Young Adults Support Group meets quarterly over the phone. Parents can share experiences, advice and stories with each other. Our Teen/Young Adult leader is also available to give insight into living with CAH as a young adult.

The NCAH Women Support Group meets quarterly over the phone with our two leaders who share insights and their experiences. This group also has a secret Facebook page where members freely ask questions and exchange information.

Secret Facebook Pages are safe environments where those affected by CAH are able to ask questions, share experiences with others who are in the same situation. These pages include one for each state, Newborns, Surgery, Parents of Children with CAH, Parents of Teens/Young Adults, SWCAH Women and NCAH Women. Contact us for information about accessing the pages.

Support group leaders play a vital function in our community. If you are interested in becoming a support group leader in your area, please contact us. Click on your state below to find a support group leader in your area.

For a complete listing of upcoming CARES Foundation support group events, please visit our Event Calendar.

Support Group Leaders by Location

Gail Blucker
(501) 835-6679
ar.support@caresfoundation.org
Kristen Guzman Brazie
(408) 597-5417
ca3.support@caresfoundation.org
Natalie Elms
(647) 210-5974
can.support@caresfoundation.org

Sue Shirey
(619) 666-2374
ca4.support@caresfoundation.org

Yvette Boose
(303) 877-6748
co.support@caresfoundation.org
Wendy Thornley
(860) 874-7250
ct1.support@caresfoundation.org
Michelle Wanamaker
(202) 710-7749
dc.support@caresfoundation.org
Marisa Langford
(813) 785-8484
fl.support@caresfoundation.org

Celeste Quiroga
(561) 600-7587
fl1.support@caresfoundation.org

Laura Adderholt
(423) 326-4683
ga1.support@caresfoundation.org
Stephanie Boland
808-888-6063
hi.support@caresfoundation.org
Jennifer Golesis
(801) 560-6534
ut1.support@caresfoundation.org
Cathy Layton
(708) 935-7535
il1.support@caresfoundation.org

Courtney Tolbert
(815) 301-7321
il.support@caresfoundation.org

Jennifer Thiel
(630) 201-4605
il3.support@caresfoundation.org

Erica Callam
(812) 946-0455
in1.support@caresfoundation.org
Eden & Jeff Lord
(913) 787-4592
ks.support@caresfoundation.org
Erica Callam
(812) 946-0455
in1.support@caresfoundation.org
Carly Tusing
(318) 469-6870
la.support@caresfoundation.org

Lauren Blanke
(985) 789-0667
la1.support@caresfoundation.org

Alexandra Dubois
(617) 501-3523
ma.support@caresfoundation.org
Stacey Holmgren
(507) 581-0063
mn.support@caresfoundation.org
Bobbie Anne Sison
(866) 227-3737
ms.support@caresfoundation.org
Jennifer Golesis
(801) 560-6534
ut1.support@caresfoundation.org
Julie Tacker
(702) 399-8553
nv.support@caresfoundation.org
Beth Holtzman
(609) 214-2328
nj.support@caresfoundation.org
Brandee Caoba
(505) 417-3105
nm.support@caresfoundation.org

Beth
(866) 227-3737@CARESFoundation.org>
ny6.support@caresfoundation.org
Louise Fleming, R.N.
(919) 363-6447
nc1.support@caresfoundation.org
Melissa Axtell
(907) 250-3350
ok.support@caresfoundation.org
Johnette & Kevin Kinard
(803) 364-9945
sc.support@caresfoundation.org
Amber Wilkinson
(423) 741-3316
tn.support@caresfoundation.org
Meridith Taylor
(512) 796-9651
tx4.support@caresfoundation.org

Erika Hagenbeck
(214) 532-0390
tx5.support@caresfoundation.org

Jennifer Golesis
(801) 560-6534
ut1.support@caresfoundation.org
Terri Chaney
(802) 440-8057
vt.support@caresfoundation.org

Virginia Booth
(804) 580-0984
va1.support@caresfoundation.org

Jennifer Golesis
(801) 560-6534
ut1.support@caresfoundation.org

Support Group Leaders by Specialized Topic

Erica Callam (Women)
(812) 946-0455
in1.support@caresfoundation.org

Mia Moody (Women)
(317) 441-3004
in.support@caresfoundation.org

Men with Classical CAH
Contact CARES (866) 227-3737
contact@caresfoundation.org

Gail Blucker
(501) 835-6679
ar.support@caresfoundation.org

Virginia Booth
(804) 580-0984
va1.support@caresfoundation.org

Debbie Cullen
(570) 316-7854
md.support@caresfoundation.org

Beth Holtzman
(609) 214-2328
nj.support@caresfoundation.org

Lisa Jaskie
(414) 645-0782
wi1.support@caresfoundation.org

Julie Tacker (Boys)
(702) 399-8553
nv.support@caresfoundation.org

 

Meridith Taylor
(512) 796-9651
tx4.support@caresfoundation.org

Michele Bacus
312-213-1128
il2.support@caresfoundation.org

Alexandra Dubois
(617) 501-3523
ma.support@caresfoundation.org

Erika Hagenbeck
(214) 532-0390
tx5.support@caresfoundation.org

Debbie Cullen
(570) 316-7854
md.support@caresfoundation.org

Johnette & Kevin Kinard
(803) 364-9945
sc.support@caresfoundation.org

Andrea Puschaver
(314) 439-9536
mo1.support@caresfoundation.org

Meridith Taylor
(512) 796-9651
tx4.support@caresfoundation.org

Carly Tusing
(318) 469-6870
la.support@caresfoundation.org

Please call the CARES office: (866) 227-3737
Please call the CARES office: (866) 227-3737

Marc Pollack
862-485-3060
nj1.support@caresfoundation.org

Anne Claire Aycock
601-754-6382
al2.support@caresfoundation.org

Gail Blucker
(501) 835-6679
ar.support@caresfoundation.org

Julie Tacker (Boys)
(702) 399-8553
nv.support@caresfoundation.org

Susan Aycock (Older Girls)
(601) 833-8373
ms1.support@caresfoundation.org

Ruth A. Nichols (Older Girls)
(714) 815-8855
ca2.support@caresfoundation.org

Terri Chaney (Pre-teen)
(802) 440-8057
vt.support@caresfoundation.org

Stephanie Grubler
(203) 809-8334
ct.support@caresfoundation.org

Sue Shirey
(619) 666-2374
ca4.support@caresfoundation.org

Lesley Holroyd, Florida
(321) 607-0962
fl2.support@caresfoundation.org

Janice Blaszczyk, Michigan
(248) 334-5954
mi1.support@caresfoundation.org

Jenny Obando, New York
(516) 729-3641
ny5.support@caresfoundation.org