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Resources

Useful Links

Please note: CARES Foundation does not intend links on this online site to be referrals or endorsements of the linked entities and offers no comment regarding the contents of other websites linked to this website.

Resources for Coping with Loss

Hope After Loss

Creating a Family Health History

Heartland Regional Genetics Network – “Family History Tools”

My Family Health Portrait

Drugs and Medications

Hormone Therapies
Anti-androgen and aromatase inhibitors explained

CYP
Understanding individual reactions to medications and differences

Message Boards/Chat Groups

CARES Spanish Group

Chat Group for Women with Late-onset CAH
CAHSisters2 is a listserv for adult women with late-onset CAH. You can subscribe to this listserv through Yahoo! Groups, a free, easy-to-use email group service.

International Support Groups

Australian Support Group

CLIMB CAH Support Group, UK

Great Ormond Street Hospital CAH Parent and Patient Group, UK

Addison & Cushing International Federation (ACIF)

CAH Support India – Facebook Group/Page

CARES/CLAN Support Groups, India

Association Surrénales, France

NVACP, Netherlands

Congenital Adrenal Hyperplasia Support Group of New Zealand (CAHNZ Trust)

Die AGS-Eltern- und Patienteninitiative e.V., Germany

Riksföreningen för Congenital Adrenal Hyperplasia, Sweden

Surgery

Cornell-Weill, NY Presbyterian Hospital

Intersex Society of North America

Other Rare Disease Resources

Global Genes™  – one of the leading rare disease patient advocacy organizations in the world.

National Organization of Rare Diseases (NORD)

The Genetic Alliance

Medication, Laboratories and Conversions

SI and Conventional Conversion Calculator