Research>>Clinical Trials

Clinical Trials

• CAH Volunteers Needed for Natural History Study at NIH - patients of all ages with CAH (both classic and nonclassic)
• CAH and Osteoporosis Screening Study at UNC - children with CAH who are 8-12 years old (bone age 14 years) and are still growing. Siblings (6-14 years old, bone age 14 years old) of those children with CAH who otherwise meet the same eligibility criteria except that they do not have CAH and are not on glucocorticoids
• CAH Steroid Study Riley Hospital for Children- children who have classic CAH, are not yet in puberty, and are between the ages of 5 and 12 years old
• Prenatal Diagnosis Research Project to Target which Women Should Take Dexamethasone During Pregnancy - couples at risk for having an affected child with CAH to participate in a research project in Boston.
• NCAH/CAH Stress Study at Children's Hospital of Los Angeles - individuals with NCAH and CAH and their family members (parents or siblings)
• Modifier Genes in 21-hydroxylase Deficiency Study - open to participants who are at least 18 years of age, taking less than 15 mg/m² hydrocortisone
  per day for at least 4 weeks, have two“severe” alleles excluding the A/C656G mutation and will consent to genetic testing, if necessary
• Women Diagnosed With Congenital Adrenal Hyperplasia - telephone interview of women aged 25-45
• Classical Adult Women’s Quality of Life Study - survey of women with classical CAH (Salt wasting and simple virilizing forms) over the age of 18

Other Resources for Clinical Trials
Clinical Trials (NIH)
CenterWatch
Recruitment (British Society for Pediatric Endocrinology and Diabetes)
A Parent’s Guide to Medical Research