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CARES Foundation Announces Plans for 2006 Conference

(UNION, NJ, September 10, 2006) - The CARES Foundation is pleased to announce its 2006 CARES CAH Conference will be held Sunday November 12, 2006, from 9:00 am to 5:00pm in the Jubilee Hall of Seton Hall University in South Orange New Jersey.

"This is an excellent - and rare - opportunity for individuals and families affected by Congenital Adrenal Hyperplasia (CAH), medical professionals and research scientists to gather, meet and learn from one another," said Kelly Leight, executive director of the CARES Foundation, about the conference. Under the theme of Bringing the CAH Community Together, conference presentations will include:

  • New Advancements in CAH Treatment & Future Trends in Research
  • Research Roundtable
  • Behavioral and Psychological Aspects of CAH
  • Monitoring & Treatment of CAH/NCAH
  • Weight Management Issues with CAH
  • Pregnancy & Reproduction in CAH/NCAH
  • Surgical Reconstruction in CAH
  • Transition to Adult Care & Adult Healthcare Issues
  • Insulin Resistance in CAH
  • Preparing for and Responding in an Emergency
  • Panel Discussion: Adults with CAH/NCAH

Speakers scheduled to date include:

  • Henry Anhalt, D.O(host) - Division Director, Pediatric Endocrinology, St. Barnabas Medical Center, Livingston, NJ
  • Susan Baker, Ph.D. - Psychoendocrinologist, Mount Sinai Medical Center, New York, NY
  • Sheri Berenbaum, Ph.D. - Professor of Psychology and Pediatrics, The Pennsylvania State University, PA
  • Deborah Merke, M.D. - Pediatric Endocrinologist, Chief of Pediatric Services, NICHD-Pediatric & Reproductive Endocrinology Branch, National Institutes of Health
  • Dix P. Poppas, M.D. - Chief Pediatric Urologist, Institute for Pediatric Urology, Children's Hospital of New York-Presbyterian/Weil-Cornell
  • Scott Rivkees, M.D. - Associate Chair of Pediatric Research Director, Yale Child Health Research Center Chief, Section of Development Endocrinology & Biology, Professor of Pediatrics, Yale University School of Medicine, New Haven, CT
  • Phyllis Speiser, M.D. - Chief, Division of Pediatric Endocrinology, Schneider Children's Hospital

This event is intended for adults and older children, physicians, nurses, medical researchers and other healthcare professionals of the CAH Community. For those traveling with young children, a recreation room staffed by volunteers will be available, but spaces are limited. Spanish-language translation services also will be available. Early registration via the CARES website (http://www.caresfoundation.org) or by calling 877-227-3737 is encouraged to guarantee space in the recreation room or translation services. There is no charge to attend this event, but tax-deductible donations are greatly appreciated. Financial assistance is available for travel expenses to the conference for those in need.

Event sponsors include St. Barnabas Medical Center, Centers for Disease Control and Prevention and the March of Dimes.

CAH is a family of inherited disorders affecting the adrenal gland. The most common form is 21-hydroxylase deficiency, which is inherited in severe or mild forms. The severe form, called Classical CAH (CAH), is a life-threatening disorder. The milder form, called Nonclassical CAH (NCAH), may cause symptoms at anytime from infancy through adulthood. While each individual presents differently, common symptoms include premature development of body hair; body odor; early, rapid growth spurt, but ultimately short stature as adult; oily hair and skin; severe acne; anxiety, depression, mood swings, migraines; and infertility.

CARES Foundation, Inc. is a 501(c)3 non-profit organization committed to improving the lives of families and patients affected by CAH through pro-actively advancing research for a cure, educating the public and healthcare providers about all forms of CAH, advocating for universal newborn screening, and providing support services and resources vital to the CAH community worldwide. For more information on the 2006 CARES CAH Conference, lodging for this event, the CARES Foundation or CAH, please visit our website at http://www.caresfoundation.org or call 866-277-3737.

Contact:
Kelly Leight
Kelly@caresfoundation.org
2414 Morris Ave., Suite 110
Union, NJ 07083
Phone: (908) 364-0272
Toll-free: (866) 227-3737
Fax: (908) 686-2019
URL: www.caresfoundation.org

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