Press Room>Current News>Everyone CARES Gala
CARES FOUNDATION CELEBRATES TEN YEARS OF
IMPROVING HEALTH…CONNECTING PEOPLE…SAVING LIVES
(UNION, NJ, March 11, 2010) – On Thursday evening, March 18, 2010, CARES Foundation will host its annual Everyone CARES Gala at 230 Fifth in Manhattan. The event will feature a cocktail reception, open bar, dinner, awards ceremony, and a silent auction. Highlights of the silent auction include a 14-day cruise from Venice to Barcelona, 7-day stay in Hawaii, cocktail reception & dinner cruise for four, and two round-trip airline tickets. Funds raised through the event will support CARES Foundation’s mission to improve the lives of families and individuals affected by CAH.
At this event, CARES will recognize the remarkable contributions of distinguished honorees: Kelly and Adam Leight & Family, Maria I. New, M.D., and PerkinElmer. Corporate sponsors include: Baker Hostetler, Global Credit Advisors, PerkinElmer, Pfizer Inc. and RBC Capital Markets. The cost to attend is $200. To purchase tickets or make a donation, call 201-709-4296.
The Gala, celebrating CARES Foundation’s 10th anniversary, will be a memorable night looking back on accomplishments of this organization dedicated to improving the lives of individuals and families affected by Congenital Adrenal Hyperplasia (CAH). A decade highlighted by the realization of universal newborn screening for CAH, increased CAH research, and CARES support and education initiatives. A bright future that will include CAH comprehensive care centers (centers of excellence), and emergency responders who can treat adrenal crisis.
“What began as a mother's dream to learn more about her child's diagnosis of CAH has turned into a national organization dedicated to serving families and individuals affected by this rare disorder,” said Dina Matos, Executive Director of CARES Foundation. “Ten years later, CARES Foundation is the leading resource for families and healthcare professionals in the areas of CAH research, education, advocacy and support. Where there was no centralized location for information and networking, there is one today. Where there was little to no research on CAH, CARES has proactively advanced research for a better understanding of CAH, better treatments and a cure. Where the non-endocrine community knew next to nothing of this disease in 2000, CARES has spent a decade educating the public and healthcare professionals about all forms of CAH,” added Matos.
“At the time of CARES’ founding only 18 states were screening for CAH resulting in misdiagnoses, delays in obtaining the most appropriate medical care, and loss of life,” noted Gregory Kraff, President of CARES’ Board of Trustees. “Over the past decade, CARES Foundation has worked tirelessly to ensure that every baby in America has a chance at a healthy start through advocating for expanded newborn screening including testing for CAH. One of the 29 core conditions recommended for testing by the American College of Medical Genetics (ACMG), as of 2008, CAH is now screened for at birth as a part of the newborn screening panel in all 50 states. We are saving our babies. The time has come for us to follow through and keep them healthy throughout their lives. To this end, CARES has begun a project for the establishment of comprehensive clinical care centers for the treatment of CAH throughout the life cycle and has launched initiatives across the nation for immediate, appropriate emergency medical treatment of adrenal insufficiency,” said Kraff.
Congenital Adrenal Hyperplasia (CAH) is a family of inherited disorders affecting the adrenal gland. Over 90% of those diagnosed with CAH are affected by 21-hydroxylase deficiency. Inherited in severe, moderate and mild forms, the major types of CAH are Classical and Non-Classical CAH. The severe form of CAH or Classical CAH can result in life-threatening imbalances in salt and hormone levels. If undetected at birth, Classical CAH can lead to adrenal crisis and death. Frequently, newborn babies show no outward signs of the disorder and are sent home only to present a few weeks later for urgent medical attention at a time when they are beyond resuscitation. The mild form of CAH may cause symptoms at anytime from infancy through adulthood. While each individual presents differently, common symptoms include: premature development of body hair, body odor, rapid growth spurt, but ultimately short stature as adult, early puberty, severe acne, anxiety, depression, mood swings, migraines and infertility. The genetic frequency of Classical CAH is approximately 1 in 10-15,000 births. NCAH affects 1 in 100 to 1 in 1000 in the general population, depending upon the ethnic composition of a given community, since its frequency varies in different ethnic groups. For example, it affects one in 27 Ashkenazi Jews, one in 40 Hispanics, one in 53 Croatians, and one in 300 Italians. All forms of CAH are managed through oral medication that regulates hormone levels and replaces hormones not made by the body.
About CARES Foundation…
CARES Foundation, Inc. is a 501(c)3 non-profit organization committed to improving the lives of families and patients affected by CAH through pro-actively advancing research for a cure; educating the public and healthcare providers about all forms of CAH; advocating for universal newborn screening; immediate, appropriate emergency medical treatment; and comprehensive lifelong care; as well as providing support services and resources vital to the CAH community world-wide. For more information on CARES Foundation and CAH, please visit our website at: www.caresfoundation.org or call 866-277-3737.
CARES Foundation Contact:
Dina Matos, Executive Director (firstname.lastname@example.org)
2414 Morris Ave., Suite 110
Union, NJ 07083