Press Room>Fact Sheets>Needs
Needs of the CAH Community
Research for a Cure
CAH has no cure and without research there never will be one. Federal funding for CAH-related research is extremely limited; therefore, the CAH community and our supporters must be the ones to fund this research.
Many physicians and the general population are not aware of the symptoms of this inherited disorder and how common it is. Therefore, healthcare practitioners often fail to identify CAH and treat the symptoms rather than the underlying cause leaving children to suffer years of visiting doctor after doctor in search for answers to their health problems. We must raise awareness of CAH, its symptoms, diagnostic protocols, treatment, genetic frequency, the necessity for early intervention and benefits of newborn screening in order to reduce suffering and save lives.
Since CARES Foundation was founded in 2001, we have grown to represent more than 2,200 affected individuals and families, and over 500 healthcare and public health professionals in all 50 states and 38 nations. Our rapid growth points to the desperate need for support services and programs.
updated July 15, 2008