URL:

www.caresfoundation.org

Founding Date:

October 2000

Executive Director:

Dina M. Matos

Mission:

CARES Foundation is committed to improving the lives of families and individuals affected by Congenital Adrenal Hyperplasia (CAH) through proactively advancing research for a better understanding of CAH, better treatments and a cure; educating the public and healthcare professionals about all forms of CAH; advocating for universal newborn screening; immediate, appropriate emergency medical treatment; and comprehensive lifelong care; as well as providing support services and resources vital to the CAH community worldwide.  

Programs & Services:

• One-on-one support for affected individuals and their families
• Research grants to qualifying researchers for treatments and a cure
• Educational conferences for individuals, and their families and health care professionals
• Comprehensive newborn screening education and advocacy
• In-depth newsletters
• Physician referral service
• Financial assistance for travel for families with a financial need for specialist care to attend CARES sponsored events