Winter 2009 Newsletter
CARES Foundation, Inc.
A
Message from the Acting Executive Director
Dear Friends,
Happy New Year! I hope all of you and your loved ones enjoyed a magical holiday season and are looking forward to good things in the new year. CARES Foundation certainly is, as we’ve got many exciting events coming up in 2009.
Everyone
CARES Gala
On
March 18, CARES Foundation is honoring Dix P. Poppas, M.D. and Pfizer Corporation for
their contributions to CARES and the
CAH community. Dr. Poppas is Chief of Pediatric Urology at the Children's Hospital of New York-Weill Medical College of Cornell University. Dr. Poppas' practice is limited to pediatric urology with special interest in genital reconstruction, laparoscopy and intersex disorders. He serves as Director of the Laboratory for Minimally Invasive Urologic Surgery. Pfizer has, over the years, played a pivotal role in the treatment and management of CAH by making Solu-Cortef available to those affected by CAH and as a generous corporate sponsor to CARES. CARES Foundation and the CAH community are truly grateful for the contributions and commitment of Dr. Poppas and Pfizer Corporation.
CME
Workshop for Physicians
CARES
Foundation’s first ever continuing medical education (CME) workshop is scheduled
for June 9, 2009 in Washington, DC. The workshop is for physician education and
will last a full day. The main focus of the workshop is on CAH throughout the lifespan
with information on other adrenal disorders as well. Our co-sponsor for the workshop
is The University of Texas Southwestern Medical Center. Please don’t forget
to tell your doctors about this opportunity.
Family
Conference
Mark
your calendars! The next CARES Family Conference is scheduled for Sunday, November
1, 2009 at the College of St. Elizabeth’s in Madison, NJ. This will be an
all day event. We look forward to sharing more of the details with you soon and
hope to see you there.
Chevron
Houston Marathon - Run
for a Reason
This
year, CARES Foundation was included for the first time on the list of charities
taking part in the Run for a Reason. This is a wonderful opportunity for CARES
to raise more awareness about CAH and we are thrilled to be included. For more information
on our registered runner, Gary Russell, and how to donate, see page 5.
We’re
on Facebook!
CARES
Foundation now has a Facebook page. All you need to do to join our cause is download
the “Causes” application to your own Facebook page and plug CARES Foundation
into the search option. Facebook is a great way to stay connected and build your
own network, so join today!
Personal
Stories
Many
of our newsletters have included inspirational personal stories about living with
CAH. You may remember the one about our race car driver from the last issue. It
would be really wonderful if we were able to include a personal CAH story in each
and every newsletter, so I’m inviting you to tell yours. If you’d like
to share your experience with the rest of our membership, please send your story,
with a picture or two, to me at suzanne@caresfoundation.org. I
look forward to reading your story!
Best Wishes for a Happy and Healthy New Year,
All my best,
Suzanne
Founders
Kelly and Adam Leight
Staff & Consultants
Suzanne Levy
Acting Executive Director
Suzanne@caresfoundation.org
Meryl I. Stone
Chief Operating Officer
Meryl@caresfoundation.org
Mazal
Wolfskehl
Bookkeeper
Mazal@caresfoundation.org
Odaly Roche
Administrative Assistant
Odaly@caresfoundation.org
Camela Cruz
Intern
Camela@caresfoundation.org
Gretchen Alger Lin
Public Affairs
Gretchen@caresfoundation.org
Stephanie Erb
Parent/Family Support
Stephanie@caresfoundation.org
BOARD OF TRUSTEES
Gregory Kraff, Acting President
Jessica Hall Upchurch,
Acting Vice President
Vivian Altman Quintanilla, Treasurer
Stephanie R. Fracassa, Secretary
Deborah Brown, R.N.
Louise Fleming, R.N.
Monica L. Heinze
Tonya Judson, R.N.
Kelly Rosso Leight, Esq., President Emeritus
Alan Macy
Stephen Maebius
Catherine Peterson
Karthik Radhakrishnan
Victoria Shenderovich
Diane Snyder, M.D.
Daniel Taylor
Michael P. Wajnrajch, M.D.
SCIENTIFIC & MEDICAL
ADVISORY BOARD
Henry Anhalt, D.O.
Richard J. Auchus, M.D., Ph.D.
Ricardo Azziz, M.D.
Susan W. Baker, Ph.D.
Sheri A. Berenbaum, Ph.D.
Felix A. Conte, M.D.
Alejandro Diaz, M.D.
Walter Futterweit, M.D.
Mitchell E. Geffner, M.D.
Karen J. Loechner, M.D., Ph.D.
Claude Migeon, M.D.
Walter L. Miller, M.D.
Maria I. New, M.D.
Sharon E. Oberfield, M.D.
Dix P. Poppas, M.D.
Richard C. Rink, M.D.
Scott A. Rivkees, M.D.
Richard Ross, M.D.
David E. Sandberg, Ph.D.
Ellen Seely, M.D.
Phyllis W. Speiser, M.D.
Bradford L. Therrell, Ph.D.
Maria Vogiatzi, M.D.
Garry Warne, M.D.
Selma Feldman Witchel, M.D.
This newsletter is published 4 times a year.
Disclaimer: Any communication from CARES Foundation, Inc. is intended for informational and educational purposes only and in no way should be taken to be the provision or practice of medical, nursing or professional healthcare advice or services. The information should not be considered complete or exhaustive and should not be used in place of the visit, call, consultation or advice of your physician or other healthcare provider. You should not us the information in this or any CARES Foundation, Inc. communication to diagnose or treat CAH or any other disorder without first consulting with your physician or healthcare provider. The articles presented in this newsletter are for informational purposes only and do not necessarily reflect the views of CARES Foundation, Inc.