Home>>Newsletter

 
   

Need to look up a previous issue of the CARES Foundation newsletter?  All of our issues are listed below.  You can view these newsletters in PDF (Adobe Acrobat) format or in HTML.  (Note: PDF is best for printing.)  You can download Adobe Reader here.

       
In this Issue   Articles      
   

(for detailed listings click HTML)

 
       
Fall 2008 -

Hirsutism in Premenopausal Women

  
PDF - Duocort Gets Orphan Drug Designation in the US  
HTML - Presidential Candidates' Health Care Proposals  
  - Newborn Screening in Brazil  
  - Fall Michigan Family CAH Gathering  
  - No-Sweat 2008 Results  
       
Spring 2008 - Aromatase Inhibitors 1  
PDF - Hydrocortisone Infusion-pump Therapy 7  
HTML - P450 Oxidoreductase Deficiency  
- Alcohol, Teens & Adrenal Insufficiency  
  - CARES Conferences  
  - CARES Foundation & CAH News  
  - Newborn Screening, Support Group and Fundraising Updates  
       
Fall 2007 - Pubertal Growth Velocity  
PDF - Hypertension in CAH Kids  
HTML - Prenatal Dex  
  - 2006/7 Member Survey Results  
  - 2007 No-Sweat Run for a Cure Results  
  - CARES Foundation & CAH News  
  - Newborn Screening, Support Group and Fundraising Updates
       
Summer 2007 - Prenatal Treatment of CAH  
PDF - Nerve Sparing Reduction Clitoroplasty: Analysis of Clitoral Sensativity & Viability  
- NIH Natural History Study Update  
- 2006 CARES Foundation Annual Report  
  - Profiles of CAH-affected Members: Teen & Parent Perspectives  
  - Medication News  
       
Winter 2007 - Management of Hair Loss in Androgenic Disorders  
PDF - Making Good Decisions about CAH: Parents' Perspectives  
HTML - The Use of Antiemetics to Prevent Dehydration in CAH  
  - 2006 CARES CAH Conference Report  
  - Profiles of CAH-affected Members  
  - Carrier Testing in Minors:Ethical Issues & Decision-making within a Familial Context  
  - Clinical Trials, Controversy, Newborn Screening and Support Group Updates  
       
Fall 2006 - 3β-Hydroxysteroid Dehydrogenase Deficient NCAH: A Myth or Reality?  
PDF - CARES Awarded $50,000 from Peregrine Charities  
HTML - Celebrating Five Years of Saving Our Babies  
  - Profiles of CAH-affected Members  
  - Interpreting research results: The dangers of scientific jargon  
  - Insulin Pump for Hydrocortisone Delivery?  
  - Clinical Trials, Controversy, Newborn Screening and Support Group Updates  
  - 2006 CARES CAH Conference Information  
       
Winter 2006 - In Search of a Cure for CAH: Cell-Based Therapy & the Role of Stem Cells  
PDF - Is CAH Screening Worth It?  
  - 2005 CAH Conference Report  
HTML - Reconstructive Surgery Act - HR 4022  
  - Profiles of CAH-affected Members  
  - Continuous Treatment for Men with CAH  
  - Clinical Trials, Controversy, Newborn Screening and Support Group Updates  
       
Fall 2005 - Pregnancy & CAH: What Every Woman with Classical CAH Should Know  
PDF - CAH & Pregnancy – A Short Story with a Happy Ending  
HTML - Letters: The Surgery Decision  
  - Growth Hormone and Height in CAH  
  - Warners Speak at Newborn Screening Conference  
       
       
Spring 2005 - The Potentials of Adrenal Cortical Stem Cells  
PDF - Medical Management of CAH:
Transition from Childhood to Adulthood		  
HTML - CARES Awards Research Grant to NIH  
  - Treating Hirsutism Permanently with Electrolysis  
  - Introducing CLAN (CAH Living as Neighbours)  
  - Family Support Groups  
  - Update on Genetic Discrimination  
  - CARES Foundation Annual Report  
       
       
Winter 2005 - Basics of Genetic Testing for CAH  
PDF - How CAH Genes Translate Into Symptoms:
The Genotype/ Phenotype Connection		  
HTML - CAH and Me: What It’s Like Being A Teen With CAH  
  - Solu-Cortef and Cortef Shortage Ended  
  - Comparison of Labs That Offer DNA Testing  
  - HHS Newborn Screening Committee Update  
  - Family Support Groups  
       
       
Fall 2004 - Endocrinologic and Psychologic Evaluation of 21-Hydroxylase Deficiency Carriers  
PDF - Extra Hydrocortisone Not Beneficial With Exercise  
HTML - Psychological Adjustment in CAH  
  - My Vietnam Experience  
  - Vietnamese Children & Teenagers With CAH  
  - Fundraising Corner  
  - Family Support Groups  
  - CAH Conference  
       
Spring 2004 - Exercise Study of Patients with Classic CAH  
PDF - Haitian Adoptees  
HTML - New Advisory Board Member  
  - Clinical Trials  
  - Fundraising Corner  
  - Parent Tips  
  - Newborn Screening & Legislative Update  
       
Winter 2004 - Weight Management for Children with CAH  
PDF - Preimplantation Genetic Diagnosis  
HTML - Laura‘s Story  
  - Newborn Screening & Legislative Update  
  - CARES Foundation Research  
  - Parent Tips  
  - CARES Contributors  
       
       
Fall 2003 - Adrenalectomy for CAH  
PDF - Communicating with Your Child's Doctor  
HTML - Surgery Controversy Continues  
  - Adrenalectomy: a Personal Story  
  - New CARES Medical Advisor  
  - Newborn Screening Update.  
  - Parent Tips  
       
       
Spring 2003 - Coping with Hirsutism  
PDF - Adrenal Crisis  
HTML - NCCAH in Women of Reproductive Age  
  - Testicular Tumors  
  - Newborn Screening & Legislative Update  
  - New CARES Medical Advisors  
  - Parent Tips  
       
       
Winter 2003 - Monitoring of Treatment in CAH  
PDF - Surgery & Related Issues  
HTML - Newborn Screening  
  - Prenatal Diagnosis & Treatment for Classical CAH  
  - Changing the Birth Certificate or Birth Record  
  - Hydrocortisone Infusion Pump Study  
       
       
Fall 2002 - Managing CAH in public schools  
PDF - CAH Consensus Statement  
HTML - Legislative Updates  
  - Research  
       
       
Spring 2002 - CARES Foundation SCIENTIFIC and ADVISORY BOARD  
PDF - Getting Ready For Summer: Adrenal Crisis  
HTML - What Do You Mean It’s Not Covered?  
  - New Report on Pregnancy and Non-Classical
(Late-Onset) CAH--An Abstract From PubMed