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In this Issue |
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Articles |
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(for detailed listings click HTML) |
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Summer 2010 |
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Nutrition Aspects in CAH Management |
PDF |
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Making Informed Decisions |
HTML |
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Centers of Excellence & EMS Campaign Update |
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CAH Around the Globe |
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No Sweat Run for a Cure, Everyone CARES Gala & Family Fundraisers |
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New Services, Support Groups, Regional Conferences |
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Personal Story |
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News |
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Fall 2009 |
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CAH Comprehensive Care Centers |
PDF |
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Hydrocortisone Dosing Recommendations During |
HTML |
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Puberty in Classical CAH |
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EMSC - A Piece of the EMR Puzzle
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No Sweat Run for a Cure & Family Fundraisers |
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Advocacy Update |
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Personal Story |
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News |
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Summer 2009 |
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Risk for Voice Changes in Women with CAH
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PDF |
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New Chronotherapy for Addison’s Disease
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Premises Notes - A Piece of the EMR Puzzle
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Personal Story
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New York Times Article on NCAH
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No Sweat Run for a Cure
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Advocacy Update |
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Spring 2009 |
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Nonclassical Adrenal Hyperplasia |
PDF |
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Everyone CARES Gala |
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2009 No-Sweat Run for a Cure |
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EMS Campaign Update |
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Blood Spot Debate Heats Up |
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Welcome CAHSAPI: New CARES Support Group in the Philippines |
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Winter 2009 |
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Female Prenatal Treatment of Classical CAH with Dexamethasone: Pro vs. Con |
PDF |
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Everyone CARES Gala |
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Continuing Medical Education |
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Emergency Medical Response for CAH in Rhode Island |
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Fundraising, Advocacy and CAH Studies |
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Support Group Gatherings in New York and Wisconsin |
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Fall 2008 |
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Hirsutism in Premenopausal Women |
PDF |
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Duocort Gets Orphan Drug Designation in the US |
HTML |
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Presidential Candidates' Health Care Proposals |
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Newborn Screening in Brazil |
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Fall Michigan Family CAH Gathering |
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No-Sweat 2008 Results |
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Spring 2008 |
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Aromatase Inhibitors 1 |
PDF |
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Hydrocortisone Infusion-pump Therapy 7 |
HTML |
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P450 Oxidoreductase Deficiency |
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Alcohol, Teens & Adrenal Insufficiency |
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CARES Conferences |
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CARES Foundation & CAH News |
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Newborn Screening, Support Group and Fundraising Updates |
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Fall 2007 |
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Pubertal Growth Velocity |
PDF |
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Hypertension in CAH Kids |
HTML |
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Prenatal Dex |
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2006/7 Member Survey Results |
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2007 No-Sweat Run for a Cure Results |
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CARES Foundation & CAH News |
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Newborn Screening, Support Group and Fundraising Updates |
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Summer 2007 |
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Prenatal Treatment of CAH |
PDF |
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Nerve Sparing Reduction Clitoroplasty: Analysis of Clitoral Sensativity & Viability |
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NIH Natural History Study Update |
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2006 CARES Foundation Annual Report |
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Profiles of CAH-affected Members: Teen & Parent Perspectives |
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Medication News |
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Winter 2007 |
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Management of Hair Loss in Androgenic Disorders |
PDF |
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Making Good Decisions about CAH: Parents' Perspectives |
HTML |
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The Use of Antiemetics to Prevent Dehydration in CAH |
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2006 CARES CAH Conference Report |
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Profiles of CAH-affected Members |
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Carrier Testing in Minors:Ethical Issues & Decision-making within a Familial Context |
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Clinical Trials, Controversy, Newborn Screening and Support Group Updates |
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Fall 2006 |
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3β-Hydroxysteroid Dehydrogenase Deficient NCAH: A Myth or Reality? |
PDF |
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CARES Awarded $50,000 from Peregrine Charities |
HTML |
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Celebrating Five Years of Saving Our Babies |
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Profiles of CAH-affected Members |
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Interpreting research results: The dangers of scientific jargon |
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Insulin Pump for Hydrocortisone Delivery? |
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Clinical Trials, Controversy, Newborn Screening and Support Group Updates |
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2006 CARES CAH Conference Information |
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Winter 2006 |
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In Search of a Cure for CAH: Cell-Based Therapy & the Role of Stem Cells |
PDF |
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Is CAH Screening Worth It? |
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2005 CAH Conference Report |
HTML |
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Reconstructive Surgery Act - HR 4022 |
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Profiles of CAH-affected Members |
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Continuous Treatment for Men with CAH |
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Clinical Trials, Controversy, Newborn Screening and Support Group Updates |
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Fall 2005 |
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Pregnancy & CAH: What Every Woman with Classical CAH Should Know |
PDF |
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CAH & Pregnancy – A Short Story with a Happy Ending |
HTML |
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Letters: The Surgery Decision |
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Growth Hormone and Height in CAH |
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Warners Speak at Newborn Screening Conference |
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Spring 2005 |
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The Potentials of Adrenal Cortical Stem Cells |
PDF |
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Medical Management of CAH:
Transition from Childhood to Adulthood |
HTML |
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CARES Awards Research Grant to NIH |
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Treating Hirsutism Permanently with Electrolysis |
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Introducing CLAN (CAH Living as Neighbours) |
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Family Support Groups |
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Update on Genetic Discrimination |
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CARES Foundation Annual Report |
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Winter 2005 |
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Basics of Genetic Testing for CAH |
PDF |
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How CAH Genes Translate Into Symptoms:
The Genotype/ Phenotype Connection |
HTML |
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CAH and Me: What It’s Like Being A Teen With CAH |
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Solu-Cortef and Cortef Shortage Ended |
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Comparison of Labs That Offer DNA Testing |
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HHS Newborn Screening Committee Update |
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Family Support Groups |
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Fall 2004 |
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Endocrinologic and Psychologic Evaluation of 21-Hydroxylase Deficiency Carriers |
PDF |
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Extra Hydrocortisone Not Beneficial With Exercise |
HTML |
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Psychological Adjustment in CAH |
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My Vietnam Experience |
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Vietnamese Children & Teenagers With CAH |
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Fundraising Corner |
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Family Support Groups |
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CAH Conference |
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Spring 2004 |
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Exercise Study of Patients with Classic CAH |
PDF |
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Haitian Adoptees |
HTML |
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New Advisory Board Member |
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Clinical Trials |
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Fundraising Corner |
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Parent Tips |
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Newborn Screening & Legislative Update |
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Winter 2004 |
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Weight Management for Children with CAH |
PDF |
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Preimplantation Genetic Diagnosis |
HTML |
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Laura‘s Story |
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Newborn Screening & Legislative Update |
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CARES Foundation Research |
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Parent Tips |
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CARES Contributors |
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Fall 2003 |
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Adrenalectomy for CAH |
PDF |
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Communicating with Your Child's Doctor |
HTML |
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Surgery Controversy Continues |
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Adrenalectomy: a Personal Story |
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New CARES Medical Advisor |
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Newborn Screening Update. |
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Parent Tips |
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Spring 2003 |
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Coping with Hirsutism |
PDF |
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Adrenal Crisis |
HTML |
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NCCAH in Women of Reproductive Age |
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Testicular Tumors |
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Newborn Screening & Legislative Update |
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New CARES Medical Advisors |
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Parent Tips |
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Winter 2003 |
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Monitoring of Treatment in CAH |
PDF |
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Surgery & Related Issues |
HTML |
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Newborn Screening |
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Prenatal Diagnosis & Treatment for Classical CAH |
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Changing the Birth Certificate or Birth Record |
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Hydrocortisone Infusion Pump Study |
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Fall 2002 |
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Managing CAH in public schools |
PDF |
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CAH Consensus Statement |
HTML |
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Legislative Updates |
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Research |
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Spring 2002 |
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CARES Foundation SCIENTIFIC and ADVISORY BOARD |
PDF |
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Getting Ready For Summer: Adrenal Crisis |
HTML |
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What Do You Mean It’s Not Covered? |
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New Report on Pregnancy and Non-Classical
(Late-Onset) CAH--An Abstract From PubMed |
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