Research>>Clinical Trials>>Quality of Life Study

Quality of Life Study

We are looking for volunteers (ages 8-25) for a new research study to understand what aspects of a child's life are affected by CAH. Chronic conditions such as cancer and diabetes are known to negatively impact a child's life. However, there is little data on the psychosocial aspects that may be affected in children with CAH. With the results of this study, we hope to identify potential areas of concern that providers may need to address more closely.

What does the study involve?

• Two short surveys (appropriate for age) for the subject (child/young adult)
• Three short surveys for the parent or caregiver
  

Estimated time for completion of surveys is 20-25 minutes.

See sample questions: http://www.kidscreen.org/cms/example

If you are interested in participating or would like more information, please contact Dr. Mabel Yau at New York Presbyterian Hospital - Weill Cornell: may2008@nyp.org