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One-on-one support for affected individuals and their families |
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Local support groups |
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Educational conferences for individuals, and their families and health care professionals |
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20-page Tri-annual newsletters |
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Physician referral service |
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Financial assistance for travel for families with a financial need for specialist care and to attend CARES sponsored events |
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Grants to qualifying researchers for better treatment, better understanding of the disease, and a cure |
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Advocate for comprehensive newborn screening |
