GENERAL
CAH Consensus Statement, 2002
Congenital Adrenal Hyperplasia. Org Message Board
National Adrenal Diseases Foundation
Androgen Excess Society
CAH Living As Neighbors (CLAN)
Rare Diseases Clinical Research Network
Johns Hopkins University, Division Of Pediatric Endocrinology
The Endocrine Society
Hormone Foundation
The Lawson-Wilkins Pediatric Endocrine Society
The National Institutes of Health
American Society for Reproductive Medicine
American Association of Clinical Endocrinologists
American College of Medical Genetics
National Library of Medicine, MEDLINE
Endocrinology - Online diagnostic manuals
Other Languages:
CAH Information in Vietnamese
Your Child With CAH in Vietnamese
Your Child With CAH in Chinese
CAH Information En Francais
CAH information En Espanõl:
Non classical CAH
EL ABC DE LA HIPERPLASIA ADRENAL CONGÉNITA
HIPERPLASIA ADRENAL CONGÉNITA
Guia Para Padres Sobre la Hiperplasia Adrenal Congenita
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RESOURCES FOR WOMEN |
Young Women's Health |
Boston Children's Hospital, Center for Young Women's Health |
CREATING A FAMILY HEALTH HISTORY
Norwich Union Family Health Tree
https://familyhistory.hhs.gov/
DRUGS & MEDICATIONS
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Hormone Therapies |
Anti-androgen and aromatase inhibitors explained
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CYP |
Understanding individual reactions to medications and differences |
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MESSAGE BOARDS/CHAT GROUPS
CARES Spanish Group: A Yahoo Group for the Spanish speaking
CAH community.
LOCAH, Its Not All In Our Heads
CARES Teen Chat Group (Teens only - this is an adult monitored group) To join, go to and click on "Join This Group.
CHAT GROUP FOR WOMEN WITH LATE-ONSET CAH
CAHSISTERS2 is a listserv for adult women with late-onset CAH. You can subscribe to this listserv through Yahoo! Groups, a free, easy-to-use email group service.
INTERNATIONAL SUPPORT GROUPS
Australian Support Group
UK CAH Support Group
Addison & Cushing International Federation (ACIF)
CARES/CLAN Support Groups, India
Association Surrénales, France
NVACP, Netherlands
NZ CAH Support Group
Die AGS-Eltern- und Patienteninitiative e.V., Germany
Riksföreningen för Congenital Adrenal Hyperplasia, Sweden
SURGERY
Cornell-Weill, NY Presbyterian Hospital
Intersex Society of North America
OTHER RARE DISEASE RESOURCES
National Organization of Rare Diseases (NORD)
The Genetic Alliance
MEDICATION, LABORATORIES and CONVERSIONS
SI and Conventional Conversion Chart
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