What’s Happening Now
This year we asked our CAH community, “If you could have one wish granted, what would that wish be?”
We got lots of replies and the wishes varied greatly, but most of the wishes involved improved quality of treatment – more informed doctors, easier ways to take medication like medication pumps and auto-injectors, more awareness and education about adrenal crisis – how to prevent it and what to do if you find yourself in one of these crises; AND of course, the wish for a cure!
During this season of hope and full of wishes, we humbly ask for your financial support so the we may continue making our community’s wishes come true!
AND THANK YOU FOR YOUR GENEROUS GIFT!
Another successful season of CAH awareness-raising and fundraising walk/runs has ended.
to all of the hosts, walkers, runners, volunteers, donors, and sponsors for helping to spread awareness of CAH and supporting CARES!
A Phase 2, Multiple Dose Escalation Study to Evaluate the Safety and Efficacy of SPR001 in Adults
with Classic Congenital Adrenal Hyperplasia
The study is for an investigational, once-a-day pill for CAH, designed to correct hormone imbalance and potentially reduce the necessary dose of traditional steroid medications. If you are 18 years of age or older, and have been diagnosed with classic CAH, you may qualify to participate. Participants will receive study-related care and medication at no cost, and compensated for your time and travel.
If you are interested, CLICK HERE to see if you qualify.
CARES Foundation does not counsel individual patients either for or against participation in any specific research study. Prospective volunteers should always carefully review the study’s informed consent documentation and discuss the pros and cons of their participation with trusted advisers, including their health care providers and family members. For more information on research participation, check out https:www.hhs.gov/ohrp/education-and-outreach/about-research-participation/index.html
CLICK HERE for article from USA Today Magazine
HELP US MAKE A DIFFERENCE IN THE LIVES OF THOSE WITH CAH!
Our season of walk/runs as ended but you can still help CARES raise needed funds by hosting your very own online VIRTUAL WALK/RUN!
Comprehensive Care Centers for CAH offer comprehensive, expert and lifelong medical care for patients in four centers across the country. Visit our Care Centers page for more detailed information.
There is currently a clinical study for adults, “ATR-101 for the Treatment of Classic Congenital Adrenal Hyperplasis (CAH) seeking both male and female adults, aged 18-80. CLICK HERE FOR MORE INFORMATION AND STUDY DETAILS.
Also, a study: “Health-Related Quality of Life of Female Children with Congenital Adrenal Hyperplasia” for females between the ages of 7-18 years old. CLICK HERE FOR MORE INFORMATION AND STUDY DETAILS.
We thank you in advance for your participation!
Fall 2016 CARES CONNECTIONS Newsletter!
Get caught up on the latest CAH reseach, education, and advocacy news. Have a glimpse at what’s happening with CAH around the world. Share in the memories of CARES events from the past year. Be informed about CARES support, programs and upcoming events. Read our latest newsletter by clicking on the link below. Give us your feedback, and let us know if you have any comments or questions. Enjoy!
CARES has partnered with Lauren’s Hope Medical I.D. Jewelry. Click the image on the left, to order today and CARES will receive 5% of your purchase!
In 2001, Lauren’s Hope introduced the very first interchangeable medical ID bracelet, and overnight, people who had grudgingly worn, or even refused to wear, the standard, plain metal medical ID bracelets of the past suddenly had attractive, durable, stylish options they could enjoy wearing and change to suit their mood, outfit, or activity.
Today, more than 400,000 people wear Lauren’s Hope medical IDs every day. The ever-expanding line of medical ID bracelets, necklaces, anklets, charms, bag tags, and more is always on-trend, made to the highest quality, and guaranteed to meet your needs and expectations.
Who Is Lauren?
The original interchangeable medical ID bracelet was made for Lauren, a 13 year old with diabetes who refused to wear medical ID jewelry because, as she said, ‘It’s ugly and draws attention to my illness.’ So they set out to design a medical alert bracelet that Lauren, and the millions of people like her who avoided medical IDs when they really needed them, would actually enjoy wearing.
SHOP WITH AmazonSmile and Goodshop, and help to improve the lives of thousands of patients and families affected by CAH?
All you have to do is click on the logos below to register for each site and designate CARES Foundation as your charity of choice!
Make sure to search for CARES on AmazonSmile as “Congenital Adrenal Hyperplasia Research Educ & Support Found, Inc aka CARES Foundation”
Support Our Mission
Research, education and support for congenital adrenal hyperplasia
Support Our Mission
There are lots of ways to get involved. Become a member, make a donation, help organize an event. Your generous support improves the lives of individuals and families affected by CAH.
- EMS and Newborn Screening campaigns
- Clincal trials
- Support groups
- Connect and promote with Social Media: Facebook, Twitter, Instagram and LinkedIn
News & Notes from the CARES Foundation
The latest from our blog
REGISTRATION BEGINS NOVEMBER 10, 2017
MORE DETAILS, INCLUDING SESSION TOPICS, DISCOUNT HOTEL ACCOMMODATIONS, LOCATION INSTRUCTIONS, ETC., COMING SOON!
Please contact us if […]
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TO LEARN ABOUT CURRENT AND FUTURE FAMILY FUNDRAISERS
Parents of Newborns/Infants/Toddlers Support Group Meeting – 9:00 pm (EST)
Support Group Meeting for Parents of Children/Teens/Yong Adults – 8:30 pm (EST)
Support Group Leader Meeting – 9-10 pm (EST)