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Congenital Adrenal Hyperplasia Due to Steroid 21-hydroxylase Deficiency – An Endocrine Society Clinical Practice Guideline, 2010
The Pediatric Endocrine Society – formerly named for LawsonWilkins
Email us for different guides in other languages.
Resources for Women
Resources for Coping with Loss
Creating a Family Health History
Drugs and Medications
Anti-androgen and aromatase inhibitors explained
Understanding individual reactions to medications and differences
Message Boards/Chat Groups
Chat Group for Women with Late-onset CAH
CAHSisters2 is a listserv for adult women with late-onset CAH. You can subscribe to this listserv through Yahoo! Groups, a free, easy-to-use email group service.
International Support Groups
CLIMB CAH Support Group, UK
CAH Support India – Facebook Group/Page
CARES/CLAN Support Groups, India
Association Surrénales, France
Other Rare Disease Resources
Global Genes™ – one of the leading rare disease patient advocacy organizations in the world.
Medication, Laboratories and Conversions