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What We Do

CARES Foundation leads in the effort to improve the lives of the Congenital Adrenal Hyperplasia community and seeks to advance quality health care through support, advocacy, education and research.

The Foundation reaches out to families and individuals with Congenital Adrenal Hyperplasia (CAH), an orphan condition that is historically under served, supported and funded. We also strive to increase the awareness of CAH within the healthcare community.

CARES Foundation: Who We Are, What We Do, How We Help and Why You Should Donate

Because the disorder can be so rare, there are few CAH specialists and many medical professionals who are not even familiar with the general description of the disorder. CAH patients often go undiagnosed or suffer from inadequate or outdated care. As a result, affected families and individuals struggle for access to specialists, understanding of the disorder, and support.

CARES programs benefit more than 3,600 families and medical professionals across the United States and abroad. Our community represents every state in the United States and over 70 countries outside the US. These programs include:

  • Grants to qualifying researchers for better treatment, better understanding of the disease, and a cure
  • One-on-one support for affected individuals and their families
  • Educational materials and information for those living with the daily challenges of CAH
  • Educational progams for individuals, and their families and health care professionals
  • Comprehensive bi-annual newsletters
  • Physician referral service
  • Advocate for comprehensive newborn screening
  • Advocate for appropriate emergency medical care
  • Local support groups for affected individuals and their families
  • Financial assistance for travel for families with a financial need for specialist care and to attendCARES sponsored events

CARES Foundation improves the lives of people affected by CAH around the world